Kodiak has CHARGE Syndrome and is deafblind. Before he was born, DEAFBLIND to me was Helen Keller. I had never heard of CHARGE Syndrome.
This book is coming from the eyes of his sister and brother who's lives were drastically changed with his birth.
This book will show how that change was not all bad... This is his story through their perception...
So in many ways this is also their story...
We are working on getting this book published.
This is where you will be able to order your copy when finished.
Kodiak is also featured on the Deafblind Children's Fund website! |